Luckily, it seems that Sean ended up having some other virus and didn't end up having COVID. He was much improved by Tuesday and we ended up rejoining him on Thursday evening. The bat never made another appearance this week, so it seemed like all of the excitement was done with us. Except it wasn't!... Continue Reading →
Treatment 7 Photo I had to start off by sharing my required "Treatment Day photo." I look so weird to myself. My face looks so different, my eyes are swollen, my hair looks terrible, etc. I just look so foreign to myself, because I look old and I look tired. I'm not fishing for compliments... Continue Reading →
Well it's been a crazy last couple of days, which has made it hard to post. From a physical perspective, I've still been doing fine since my last treatment. My skin on my whole body is getting dryer and I'm getting more exhausted from a combination of getting less restful sleep and not being able... Continue Reading →
I couldn't pass up the cliche of referencing Bon Jovi! But it's the official halfway point! Only 6 more treatments to go and, so far, I have had 6 gloriously uneventful treatments. That's definitely the best thing I could have hoped for so far and a trend I hope to continue. Sean in the simulator... Continue Reading →
I feel fortunate to say that these progress updates feel pretty uneventful! The biggest challenge has definitely been the mental challenge. From a side effects perspective, I still have the gross heart burn, the mouth sores and hot flashes. I definitely have hair shedding, but so far I can't really say my hair has thinned... Continue Reading →
Chilling by the river Another step closer to being done! I didn't get to write this on my day of treatment because I was completely wasted. Not sure if the Benadryl hit me harder or the treatment felt harder. My labs were still good, but my white blood cells, hematocrit and hemoglobin were low. Need... Continue Reading →
Mermaid Maddie at the pool I took a break from riding on Sunday, but road today. Even though I felt okay when I woke up on Sunday, I had done a pretty hard ride on Saturday, so I felt like it would be a good idea to take a break and rest a bit. My... Continue Reading →
With the cooling cap tight on my head and face, and all those IV fluids pumped into me, I look like a gopher, my face is so round! Big achievement! I've officially made it one month, or one-third, through treatment! Today's treatment took more out of me. Maybe it was getting less sleep last night.... Continue Reading →
A tranquil image from our 2014 Mackinac Island visit We are into August and quickly approaching Treatment #4! My physical symptoms have been very manageable. The biggest complaints I have right now is that I notice I get canker sores in my mouth following treatment and I think that I might be starting to feel... Continue Reading →
A random picture I took of a duck in the Baltimore harbor I liked Today has been another good day! It's been similar to last week where Thursday was a great day where I had a wonderful and recharging night of sleep. Then Thursday night's sleep was not as good, but I still got a... Continue Reading →
Want a Cuke? 